Just a rundown of a few things:
1. Natalie did not pass her newborn hearing test, 6 weeks later she was retested with a sleeping (non-sedative) ABR test. That is when we found out her hearing loss was severe/profound.
2. The following week, we met with a group called New Beginnings that gave us all the information we needed to proceed with Natalie's hearing loss. We had an early intervention teacher assigned to us for weekly 1 hour appointments that started when Natalie was around 2 months old. Thankfully she just comes to our house for this, which made it so much easier than driving to those appointments.
3. By 3 months, Natalie had a sedated MRI, saw 2 different ENT's, genetic testing, saw an optholmologist, EKG done (just ruling out anything else) had a 2nd ABR test done, and was fitted for hearing aids. That is a lot of appointments, lots of running around, lots to process in 6 short weeks.
4. 3-9 months was filled with: about monthly audiology visits, new ear mold impressions made, booth testing, and everything preparatory to getting her cochlear implants in January. The only thing that was a little hiccup along the way, was the need for ear tubes due to fluid in the ear (which would prevent her from getting her CI surgery) so those were done 4 weeks before her surgery.
Natalie wore this cap off and on to help keep her hearing aids on. |
her little hearing aids... |
Natalie around 5 1/2 months with Jenni her AVT teacher |
This was around 7-8 months, so just a few months shy of hearing. |
and now a walking, talking toddler... "the rest is still unwritten" |
1 comments:
wow, can you believe you got through all that stuff! It must have been so overwhelming with a new baby. it's so exciting to see what can be done!
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